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Are there opportunities to get involved in research studies?

Research is the first important step in developing new treatments, interventions, and methods for diagnosing or detecting conditions.

Yes, there are opportunities, and we encourage you to consider participating. Please see our searchable list of Research Opportunities, including contact information and an FAQ to help you decide whether to participate.

Fragile X experts have reviewed the research studies through our NFXF Research Readiness Program. They confirm that the studies are good science and consider the individual and their family’s needs.

ClinicalTrials.gov also has a full library of resources. See Patient Resources and Learn About Studies. They also have a helpful Glossary.