Are you wondering when and how to talk to your daughter about a Fragile X syndrome diagnosis?

You’re not alone. Many families struggle with deciding when the “right” time is and what to say. Here are some strategies to help in having a conversation with your daughter about her Fragile X syndrome diagnosis.

  • This conversation does not have to be one-time; it’s an ongoing discussion targeted toward the appropriate developmental stage of your daughter. Studies have shown that children prefer to learn about their condition gradually throughout childhood and adolescence.
  • Allow for open and honest communication and encourage questions.
  • Remind your daughter that she is unique, supported, and loved.
  • The way that each girl/woman/female experiences Fragile X is different. Ultimately, you are the expert on your daughter and know the right amount of information to provide at a given time.

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