What do I do if I just found out my baby has or could possibly have Fragile X syndrome?

If you are pregnant and just found out your baby may inherit the Fragile X premutation or the full mutation:

• Ask your doctor or healthcare provider for a referral to a local genetic counselor. 
• You can also use the “find a counselor” feature on the National Society of Genetic Counselors Website
• Consider visiting a Fragile X Clinic (most clinics offer genetic counseling services) 
• Contact the NFXF. Email treatment@fragilex.org or call us at (800) 688-8765.  

Learn more here: 

• The Who, What & How for Genetic Counseling 
• Prenatal diagnosis here
• Reproductive Resources