- Fragile X Knowledge Center
- Fragile X Syndrome
- Newly Diagnosed
What do I do if I just found out my baby has or could possibly have Fragile X syndrome?
If you are pregnant and just found out your baby may inherit the Fragile X premutation or the full mutation:
- Ask your doctor or healthcare provider for a referral to a local genetic counselor.
- You can also use the “find a counselor” feature on the National Society of Genetic Counselors Website
- Consider visiting a Fragile X Clinic (most clinics offer genetic counseling services)
- Contact the NFXF. Email treatment@fragilex.org or call us at (800) 688-8765.
Learn more here: