Fragile X syndrome
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      1. Fragile X Knowledge Center
      2. Research
      3. Fragile X syndrome

      What is FORWARD Registry and Database?

      FORWARD—Fragile X Online Registry with Accessible Research Database—was implemented in 2012 to fill the recognized gap in knowledge. FORWARD Registry & Database consists of a patient and family registry plus a longitudinal database populated by clinician- and parent-reported data from individuals living with FXS.

      To learn more about FORWARD: