- Fragile X Knowledge Center
- Research
- Fragile X syndrome
What is FORWARD Registry and Database?
FORWARD—Fragile X Online Registry with Accessible Research Database—was implemented in 2012 to fill the recognized gap in knowledge. FORWARD Registry & Database consists of a patient and family registry plus a longitudinal database populated by clinician- and parent-reported data from individuals living with FXS.
To learn more about FORWARD: