What should I do if I know my child has Fragile X syndrome?

We have many resources and support to help you along your journey, but first breathe. It is easy to become overwhelmed. The National Fragile X Foundation (NFXF) is here to help throughout the lifespan. Below you will find resources to help navigating this new diagnosis.  

• Contact us here at the NFXF 

• Make an appointment to visit a Fragile X clinic 

• Contact your local Community Support Network group 

• Read, download and share our Fragile X Info Series: A New Diagnosis 

• Words of Advice for Newly Diagnosed Families. A summary of ideas, suggestions, and encouragements from parents and other family members 

• My Child Has Been Diagnosed with Fragile X Syndrome: What To Do Next.  

• Request our free e-book, Fragile X 101. Just complete the form below and your copy will be emailed to you. 

The NFXF is here to support you, your child and family every step of the way.