What should I expect in terms of resources for the remainder of my child/loved one’s childhood, adolescents, and beyond?

We provide Fragile X Syndrome Resources by age group here. You will find resources and additional information about childhood, adolescents, and beyond. The treatment and intervention recommendations for the three primary Fragile X-associated disorders are written by and for professionals, with the understanding that they will be published online by the NFXF, read by caregivers, parents, and other family members (and in the case of some documents, by patients), and shared by those caregivers, parents, families, and patients with their own care professionals.

Additionally, the NFXF is here to help you navigate your journey. You can reach out to treatment@fragilex.org with any and all questions.